~secret code stuff~

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Currently (2020) my most updated blog is pinkfeldspar.

Spaz is a useful side blog for sorting other stuff out.

Thursday, May 27, 2021

thoughts about George in his broken brain in Sublime (2007)

This is a repost from my PinkFeldspar blog. It's originally part of a movie review, but so much of this section is a reflection on what it's like living through what I call 'brain fail' and 'glitchy brain' that I think it needs to go on spaz blog where other medical posts are collected. If you get distracted and want to see more about this movie in general, you can find it among my #TomCavanaghWatch posts.

This is super random like a writing prompt and not intended to be part of the review, and is especially super spoilery if you haven't seen the movie yet, so go watch it first before you wander back.

I've blogged before about movies / TV shows and characters being how we emotionally connect into stories that we personalize while we deal with or process our own life journeys. The movie Sublime that I have reviewed recently has been one of those uncanny connects for me.

I spent years publicly blogging my own 'mess' of 'glitchy brain' fail that began, in part, in 2004 with what my doctors assumed to be a viral infection on top of years of autoimmune challenges. That is one of the layers I've been processing through. When this happens to an already fractured mind from childhood trauma and a lifetime of PTSD, I'm here to say it can be pretty devastating but survivable.

I'll jump right in. When George asks to be taken on a tour of the broken East Ward presumably under construction, he doesn't realize he's surveying his own brain fail. I've had numerous dreams like this over several years, it really does work like this when you are trying to figure out the problems that you can't see and your brain starts helping you consciously assess internal damage from the point of view of an entity that isn't human like you are, because it's existence is lived as an organ that processes data. Oddly, brains can't just type us notes, so they 'simulate' scenarios. If we break it on down, a brain as an organized entity is itself made up of numerous selves that continually work on construction and vital systems management protocols, like securing and shipping energy and oxygen. When shipping and/or nutrients are interrupted, the entire system can plunge into massive fail.

A brain is a living thing that wants to work properly. Like a machine, it runs automatically without our cognition, but like an AI, it connects to us and talks to us in dreamscapes, riddles, visuals, experiences. Our brains can interact with us as a separate entity from us, yet still be one with us. Consciousness, arguably, is not completely dependent on the brain, although the brain is how our consciousness is able to interact in this world reality we see around us with other people in it.

During this tour of the East Ward, George chances upon a room full of files, a sort of archive of information. It is organized but the version is outdated, a hard copy backup of a digital system. He finds his own file with his name on it, and in the very thick file he sees hard copy of many organ and tissue assessments. This is literally what the brain does, in one sense. Our brains know everything conceivable about what goes on in our bodies, that is their job. When there is brain disconnect, or fail, that information can stop being updated, or even be lost, and the brain automatically fills it back in with real time information gathered from what we'd think of as diagnostics. I went through this when I went through central nerve fail and memory glitching. I could feel this happening. Sometimes it was painful, most of it was maddening from a conscious aspect. I didn't know what was happening, but over time, with very patient inner communication, I was able to consciously piece together my own archive of thoughts and reflections about what I was experiencing as my brain was working on healing.

Let's talk movie clues.

When George is arguing with the care team (in his mind, since the IV bag fluid is milky white), the date on the file he found, according to the medical lawyer (a brain perspective trying to share information to his consciousness), was Feb. 29, 1947. That was not a leap year. (That had also changed from what he saw originally.) But there is also a name connected to that file that George thought was his, that actually of George Spelvin, if I heard that correctly (I could be wrong, I suck at transcription). If this is the case, then the pseudonym and nondate are key clues, along with the unidentified bandaged man that George thought he saw murdered, are really himself as an empty slot. The file contents are his own brain content being interpreted, the file identification shifts between the time he discovers it and later argues with the medical lawyer. His 'evidence' is slippery, and his brain is filling in the lawyer's words with substitute answers. Is his brain updating in progress, indicating more loss? Or is this like a dreamscape where hope plays tricks and information is slippery anyway? In any case, his brain itself is aware of loss, but communicating that into his consciousness isn't easy. George is in full fight or flight mode by the time he seizes out during his brain slamming another fail simulation at him, his necrotic leg. That scene is a giveaway since necrosis to that extent takes time. The brain is screaming that it cannot find his leg, it cannot connect and assess, but in George's consciousness (in his vegetative state), it becomes interpreted as a diseased and then missing leg.

The mystery of problem solving inside a broken brain can send a person hurtling around an emotional rollercoaster. It's hard. I was very struck by the opening theme by Bird York, Have No Fear. It's nearly impossible not to have fear when your nervous system is part of the breakage. It's like living inside downed wires and massive grid damage when you can't move around correctly or easily speak what you mean. It's like feeling trapped in a maze of confusion, so much fail going on and no way to share the fear in a way that nets back badly needed emotional support. And sometimes that support is so misunderstood in all the confusion that one can only recoil back into solitude. I have thankfully never experienced a vegetative state, but at one point I made the decision to wrap my mind around preparing for the what ifs of a complete communication sever. The intuitive response is to fight, that can translate into combative patient and poor treatment, and I chose to bend my will toward remaining calm, accepting, and pleasant, trusting what I could not trust. That is very hard. (The key to accomplishing this is to, as George found, wrestle one's demons, face the truths inside that we refused to see, and acknowledge our life fail of allowing bad things to happen, very much like a life review.)

Add to all the confusing emotional rollercoaster the jumble of real life still coming at you, the torments and persecutions of judgments from people all around you, whether those are perceived correctly or not. George reliving memories of his birthday party, assuming he was even remembering correctly, was part of the big puzzle, many pieces that needed reassembling before he could cognitively understand how to take action months after a medical accident. To recognize that he had this power to make a decision was a giant lightbulb after so much misery.

One thing this kind of life challenge wakes you up to is information. Information in general from everywhere, everywhen. Time has no meaning when one is compiling information trying to restructure. Sorting things like timestamps comes later. I personally developed an obsession with timestamps because I lost my sense of time. What I discovered was compiled information.

Using twitter as an example, I am unable to keep up with real time linear interaction flow. For a long time I couldn't keep users straight, much less their personal information that made them unique. I learned to use the twitter search bar with keywords and hashtags to pull up a time order for users and particular thoughts, and I was able to remember the timestamps for some reason. I noticed that a person might say 12 different times over 4 years how terribly sick they were, and then at other times say they never get sick. In their linear experience, they might not remember, while they are in a vital healthy phase, regularly picking up seasonal colds that last a week. I could easily pull up their histories and see that while we are in linear experience mode, we are in the moment and don't pull up all the files. Once we step out of linear experience mode, we can see all the files more easily. Well, I crashed out of linear experience mode early in life when I started dissociating, and parts of me are 'research hounds', obsessed with finding and knowing information for various reasons. Add a 'brain crash' to that and I felt like I simply dropped out of humanity synch with world time. I used social medias like twitter to see the rhythm and try to slide back into it (like jumping into an ongoing jumprope game, perhaps). I'm still not very good at that and eventually let go of trying to keep up in real time. I live in my own real time now.

We cannot explore all the files this way until we step back from in the moment reacting. George tries to react in the movie, but he's lost his moment and can't find the way back to that moment. He's stuck on a moment unaware that months of time have been passing, trying to problem solve what went wrong with very minimal access to information. He can see the broken parts, and he can see the diagnostics, but he can't see how he himself fits into that.

What he didn't expect to see were the jagged details of collected memories exposed in the brokenness, his demons, if you will. Evidently, George was very aware of the political divergence going on around the world that supported his real life success. He was aware of the human abuses going on that supported capital gains in his world. He chose not to 'see' them while he was in the moment. He believed he deserved his success because he had earned it himself. Likewise, he had chosen not to really 'see' or be cognizant of how his wife was feeling. The simulations are valid communications about his fears and feelings and situations, but since he cannot translate them logically, they create panic. His fear grips him and then all he can think about is feeling trapped and wanting to escape.

I can say that level of vividness is very real with 'broken brain' stuff. It's catastrophic to realize we are stuffed full of information that we don't even know we have. All our brains are absorbing all the things all day long. Good things, bad things, all the things. We might consciously choose to focus on our own interests as the days go by, but that doesn't mean all this other information collecting going on constantly is being deleted as overage. It's all still there, and it's all important. Why are things we ignore important? Good question, especially since humans seem to universally experience compelling life review phenomena.

When I see George really noticing these political atrocities among his jagged broken East Ward, I see him realizing the reality of what hadn't been real to him, real people, real lives affected in the kind of life he had been constructing for himself. Whether they were actually fallout from his own financial decision making is probably beside the point, because who could know that. In general, however, there was a connection, he knew it was all connected, and he chose in his linear in the moment life to not see those connections. He turned away from taking responsibility. That this is affecting him so much in the dreamscape simulations is a very strong hint that he went out of his way to stifle these feelings in his everyday life. He stayed busy making money, probably nightcapping his way through his marriage after long days of wheeling and dealing. I can't judge since I don't know, but it's looking like the rude awakening after the brain fail was a seething pile of guilt he managed to lock away for years.

How one heals from a broken brain, assuming one has that option (like me), can involve a very deep dive into cleaning out one's soul. Pulling everything out of the closets of the mind, sorting through it all, repacking and organizing- this is all inherently part of healing when a mind scatters into pieces after the structure crumbles. Restructuring is rebuilding. I think at one point I compared it to reassembling a building piece by piece out of the original materials without a blueprint after it had been blown apart. That was so many years ago I can't find which blog I wrote that on.

:edit: Found it"Like someone reconstructing an earthquake smashed mansion brick by broken brick without a plan, I am reconstructing my brain today. Like someone who lived in that mansion, I know I lived in my brain, and I know it's all still here. So I glitched again, so what. It's not gone. I just have to go over all the little connections and see what needs to be plugged back in." Dec. 27, 2012

Having our consciousness interrupted from illness or injury is a terrible thing. I compared losing my intellectual capability to beautiful people losing their good looks to some calamity, which we all know can be very devastating. I became very dumb and spent years crawling back from that. I consciously could not logically piece together my own history. I've had to wait while my brain heals bit by slow bit.

In George's case, there was no more healing. Nothing more could be done to cross back into the 'real' world of linear in the moment with his family. He had healed just enough to become minimally aware that he had a choice whether to stay or leave. Whether he was truly cognitive of his family around him is unclear, and as messed up as his awareness was anyway, we'd still only be guessing at what he truly was aware of at the end. However, he did seem, inside his head, to be aware enough of himself to reject remaining in that state. Even on life support he managed to 'escape'. There would be no way to measure if he truly did that or if his brain just stopped working, since he was considered to be effectively medically unable to ever respond again.

I could be like Fangoria and talk about Sublime's "health scare plan", but I'm not going there. I do think it's valid, though. Click to go check out issue 261 published on 9-28-19.

Friday, October 30, 2020

silence condones, part 1

This is a very long post, but it's a huge truth reveal in several parts. This is not the first time I've written about these things, which can be corroborated with other timestamps elsewhere, so if you see this published anywhere else without my name on it, it's not with my permission.

Since so much is coming to light with underground anons and odd news items starting to break the surface in mainstream medias about how prolific sexual abuse is across politics and entertainment, which seems far away to many of us and therefore not really 'real', I've been thinking about bringing the focus closer to home in the way of personal experiences.

This is a mental health issue. For the nation, for every state, for every city and town, for nearly every household. Definitely for the world. The statistic when I was working on my masters degree in college was three of every 4 people are sexually abused by the time they reach adulthood.

I was personally not traumatized sexually as a child (that I know of or remember, backed up by how ridiculously naive I was about sex right up to adulthood), but I'm surrounded by people in my own household who were. What I'm sharing here is an example of how closely this touches us all, how blind we can be to this being all around us. This is important to grasp because, as a nation hanging on to the 'news', we might find ourselves feeling pretty rattled over the next 6 months as dark information comes to light. This is nothing to be ashamed of. We have all been trained en masse to cover up secrets. Society protects its own, and unfortunately, high ranking society isn't immune from some very dark secrets.

Part 1

I was a virgin when I married a pedophile. I had no idea what that even was. I was in a bad place emotionally after my best friend was murdered and I managed to move forward in very narrow tunnel vision. I was not aware during my 4 years of marriage to this pedo that his nieces and nephews had been accosted, that incest was rampant in that family. There were hints and the usual red flags that never quite came out saying THIS HAPPENED, and I was very normal looking past those because I didn't understand them due to my lack of experience.

My first hint was an old doctor, who was doing my first ever pelvic exam, literally pulling my husband into the exam room while I was still in stirrups to show him I was still a virgin several months into our marriage. I had been feeling pretty sick and apparently was riddled with STDs. In spite of this obvious evidence, that old doctor practically spat me out the door insinuating I was the bad guy, and I went home crying. My husband was completely off the hook while I was completely lost in what just happened.

I gave birth at a local hospital when I was 21. A patient being wheeled down the hallway, who apparently knew my husband, lost his temper and nearly jumped out of his wheelchair threatening to beat him up, alleging that it wasn't cool to knock up 15 year olds. I confirmed I was 21 and married to him. I was too naive to realize back then what that could possibly mean about my husband's reputation. He was a handful of years older than me, and for some reason I've always looked much younger than I really am. I guess I made an unwitting cover for him...

When our kiddo was around maybe 8 months old, I often found her hiding in odd places being very quiet and still, like by the water heater. Sometimes I wondered how she even got in there. About that time, several other things happened. I got my first taste of spouse abuse to the point of permanently damaging a nerve near my left rotor cuff. (Much later, years of physical therapy finally gave me relief from unremitting pain my entire adult life.) Our daughter also went through a spell of severe constipation. One evening after the initial attack on my arm, during my dissociating pain shock, I heard her screaming in the bedroom and wasn't able to respond. I knew my husband was back there and would take care of her so I didn't worry. It never entered my mind that anyone would purposely make a child cry like that. A couple of weeks later I stumbled across a locked trunk he'd always dismissed as junk from his deceased father, picked the lock, and discovered a wealth of the nastiest porn like nothing you ever saw on retail shelves anywhere, including kids. He was so angry with me when he found me looking through it that I became afraid of him. Within another week I had moved us back in with my parents. I was too rattled to tell anyone.

As my husband started establishing with the county health department that he was unable to work (the scheduled visits all returned negative confirmations of his list of problems, which were obviously psychotically based on TV shows and other people's stories of having a metal plate in his head, a rod in his spine, plastic kneecaps, etc.), I got work and we moved back out again. He watched our kiddo while I walked down the street to a drive-through fast food franchise. A couple of months went by before I found out he was driving all over the county with our 2 year old and a friend of his while I was at work. She confirmed years later that he'd been trafficking her to his brothers and other acquaintances, which explains the weird strangers walking up to my daughter and I during grocery shopping and going on and on about what a doll she was and they'd like to take her home. I didn't have a clue what they were talking about, but it felt over the top and creepy.

During this time, the longer we were away from my parents, my husband became more and more hostile to me at home, he and his friend humiliating me whenever I was off work, kicking my butt with their boots and laughing, which hurt. I was afraid to say much because he always had a black powder pistol on him, within reach, or beneath his pillow at night. He took to watching out the window on nights he couldn't sleep, gun in hand like he was waiting to be raided, and maybe he was. He had also started bringing home other people's guns to take apart and blue, hanging them from the shower rod, so I had to skip showers before work. Eventually a coworker approached me about him stealing their gun and I simply said go talk to him, not my stuff.

As our marriage weirdly transitioned into something out of a TV show, our little girl started stumbling a lot. I started paying more attention, worried that she might have a developmental issue, and caught him tripping her, pushing her, even slamming her fingertips in a door. When he thought I wasn't looking he'd giggle or stomp away mad each time. I grew more fearful because his behavior was so strange. One day I walked in from work and he was peacefully sitting on the couch watching TV while our little girl screamed in the bedroom. He seemed completely unphased. I went back and found her turning colors from screaming so hard, her diaper was soaked through, and when I pulled it open I was extremely shocked to find a long pubic hair in her diaper and she looked a little swollen. With a terrified rush, I realized I had confirmation of everything wrong and quickly changed her before he could see that I saw, because I knew in that moment he was not above killing me. He had accidentally killed before during a hunting trip, according to one of his crazy stories everyone blew off. No one ever really believed that, in spite of his expert marksmanship and obsession with guns. I quickly arranged a babysitter while I was at work and demanded the one car we had, saying I'd lose my job if I were late walking again. I made sure only I could access her and pick her up, all without really confronting him, using excuses and acting dumb. I knew we were both in danger.

I wasn't sure what else to do so I went to a neighbor for help, the wife of an officer in our church. She suggested I stop watching so much TV. I was so crushed that I went home dying inside, not daring to cry openly where my husband could see. I tried to hold everything together for about a month until one of my husband's sisters showed up at the door demanding to know if I was a whore or just stupid, and she was really angry. I knew in that split second I had an ally, even though we weren't friends at all, and told her I guess I'm stupid and I don't know who to trust. She sat with me at a clinic to check my little girl out for abuse, but by then she was healed up and no one was able to confirm. I look back and wonder if she showed up because, with my child being more protected out of my husband's reach while I was at work, maybe her children were more at risk from their uncle.

One of my big unmistakable clues that the danger was rising was when he walked in one night, held a stolen rifle to my head out of the blue without saying anything, and didn't move at all until I rolled my eyes and turned around and ignored him. He held that position about ten seconds longer and then lowered the rifle and stomped away down the hallway without saying a word. My heart was thumping really hard but I didn't cry or act freaked out or anything from that moment onward through the rest of our marriage. I knew his crazy head meant it and somehow I called his bluff. If I had reacted at all, I have no doubt I would have died that day. I think he was really pissed because he hadn't had access to our daughter.

After that, I knew I needed outside help as soon as possible. I went to the health department and asked for a referal to a specialist for my child under the guise of developmental issues. I was still so naive that I didn't understand when, instead, they suddenly confronted me about the faint bruises that were nearly healed on her arms actually being cigarette burns (I'd grown up in a nonsmoking household and had no idea cigarette burns could look like that and argued that my husband just gripped her too tightly) and they said they were going to take her away immediately. I negotiated hard and fast, saying I'd have my husband out of the house within a week. I was so fortunate they were slack enough to allow me to leave the building with her. I quit my job that very day and asked for help from a lawyer who went to my church. He helped me map out a legal plan to get my husband out of our lives without rocking the danger boat. First he helped me file for legal separation on the spot, the rest would be waiting a few months for that to pass through court uncontested, and then hopefully proceed to divorce without visitation, and a big part of that sliding through successfully would hinge on not pursuing child support. It would be tricky, a long game, but he defined the goals and coached me how to behave to reach those goals.

After that visit with the lawyer (quite a lot in one day!) I picked my daughter up from daycare for the last time, telling them I quit my job, then went home the rest of the day. I was so glad my husband wasn't home when I first got there so I could set up a play area and get ready to face him. He walked in about an hour later after his friend dropped him off and was very surprised to find my daughter and I both home instead of at work and daycare. I explained to him that I had taken our daughter to the health department for stumbling so much and they were going to take her away on the spot, and here's where being brave gets really hard, and since I've lived it, I believe it when other people say how hard it is to get out of bad situations. I had to lie straight faced and act convincingly naive to a man who was already abusing me and had showed ample evidence he might hurt me very badly or even kill me. I babbled on how I couldn't understand what they were talking about, but I said ok and quit work and said I'd be staying home with our daughter myself and they'd come check on us in a few days, and within a few minutes he was packing, saying he needed a break. I never found out if he thought he might be caught for child rape, but I played stupid and nice and signed the car title over and told him come back when he got his stuff figured out. Once he was out of the house, I started packing myself and moved back with my parents. After that, it was a game of legally baiting him to out himself as a psycho while he signed away custody. He wanted visitation, and on the advice of my lawyer I insisted on a psychological assessment with the condition that he must sign a release for me to visit with the psychologist afterward before he could see her.

While I waited for that to roll out, I did take kiddo to see her daddy one time after he got a place in town, mostly so I could confirm how he was doing. He took me on a tour of the backyard and the house while she played, and didn't seem at all phased to walk me right by an unmade bed with a big pool of not quite dried blood across the sheets. There was no way that was someone's period. I nearly had a panic attack at how blatant that was, how unaware he seemed to be about that affecting anyone. I told him he got lucky, it was a nice house, and he seemed proud of himself. Once we got back to the livingroom with kiddo, he almost started slavering, insisting I go shopping and he could babysit. I laughed and said no, I'm not shopping today, but I brought you the rest of your things, which he seemed happy to see (they were really more of my own things, including his favorite record albums), but then started pressuring again for me to leave for awhile. I rattled on while I ushered our daughter out the door, down the little lane, through the gate, and by the time we made it into the car he was hostile. I don't know how he refrained from putting hands on me, maybe because we were so visible while we were outside of his house. I just kept playing really stupid and got away.

He complied with the request to talk to a doctor at a mental health center, and I was able to visit with that doctor in private another day. From all accounts, that doctor believed everything my husband said, but I had come prepared. I expected that because everyone believed him about everything except when it was something 'ridiculous' like accidentally killing someone, which he didn't bring up with that doctor. Everyone really believed he had suffered through terrible things and horrible surgeries and had a metal plate in his head, a rod in his spine, and plastic kneecaps, including this doctor. The doctor even felt sorry for him, telling me it was a pity that he was unable to work. He was very surprised when I pulled a stack of papers out of my purse, and I started asking questions. Did he tell you when we got married? Yes, he did, and the doctor read the date from his meticulous notes. I laid our marriage certificate on the desk so he could see the date was wrong. Did he tell you our daughter's birthday? Yes, he did... I laid the birth certificate down. I asked question after question and laid down paper after paper. Every single fact my husband had told that doctor was wrong. I made sure that doctor became aware of the health department referral findings about there being nothing physically wrong with him. And when I reached the end of that stack of papers, I put them all back into my purse and said Thank you, that is all I needed to know, and smiled, standing up to leave. The doctor had looked more and more worried through the visit and suddenly seemed very anxious, asking Can you get him back here? He really did look worried, and I hadn't even told him about the guns. And I said, Sorry, I really can't, and I walked out. This is proof that you cannot talk to someone during assessment and know the truth about them, no matter how many professional years a person might have under their belt. This is also proof that my family and neighbors believing my husband's words over my own only shows how naive and gullible people everywhere really are in the presence of a mentally ill person. Society as a whole, in my opinion, is far too trusting. We should all be more aware of our neighbors than saying they seemed so nice and you can't believe they did something that bad when the police come for them.

So, obviously, I was married to a quackadoodle who compulsively made things up continually, confirmed by a number of doctors, and after that I screamed at him that he would never see his daughter again, and he hasn't. All the same, I had to remain very stringent for years watching out for possible kidnap, especially after a niece of his warned me in a phone call that he'd found her school, and she told me a man was watching her on the playground.

None of that helped anyone else believe me about the sexual abuse. Even my own mother called me a liar. So that's a real thing, unless people have literally been through something traumatic or know someone who has, they cannot process it as 'real'. I was alone for years unable to talk to anyone, and ostracized by my church as a divorced woman.

Anyone can be a bad guy and you'd never know it. If someone comes to you asking for help, don't blow them off like they're lying and making up fictions. Never trust anyone with your kids no matter how nice you might think they are, because you. don't. know.

Part 2

You know what, I'm going to put parts 2 and 3 in a follow up post.

A person I know on twitter posts these numbers every single day. I think these are U.S. numbers.

You matter. 24/7 Suicide 800-273-8255 Sexual Assault 800-656-4673 Domestic Violence 800-799-7233 Child Abuse 800-252-2873 Drugs/Alcohol 800-662-4357 Veterans Text 838255 for VA help Trans 877-565-8860 TTY 800-799-4889 Crisis Text START to 741741 for trained volunteers

I also made these links one year on a blog post. They should click out.

If you need someone to talk to right now- *click*
international suicide hotlines
national domestic violence hotline (U.S.)
veterans crisis hotline
24 hour crisis hotline (depression)

If you feel alone and trapped, find ways to let someone know you need help.

Article- Can a black dot on a victim's hand help tackle domestic violence?

Friday, September 25, 2020

that time I spilled (almost) everything about my sex life

Got another one of those random calls from yet another publishing company today, didn't bother picking up, but I looked them up. That snip clicks out if you need to see the screenshots. 😂

I think at this point I've shared so much stuff for free that I may as well share the rest for free, maybe slap a book together another year (or ten lmao).

Years ago, when I first started blogging publicly as an aspienado, I wrote aspie lovin' (recopied here for mobile viewing), which got way more hits than it should have. I mean way more. Back then, xanga had internal tracking available and I was able to see it. I'm not going to copy/paste it here, but it's a cute story if you want to check it out, how crazy mixed up I get with social interaction in a relationship and why the word 'cupcake' still cracks me up.

A few months later I wrote self stim (recopied here for mobile and later shared on Autisable). I'm not going to recopy that here, either. In the comments section in that middle link in the previous sentence, someone commented that they thought they were the only person in the world to have this problem, and I left a lengthy reply with a history of how I 'came out' about my sexuality with link backs, so if you are one of those weirdo full blown synesthetes on autism spectrum and other complications, hi, me too.

So to quickly recap, I was born a mess and it may have affected my brain a little bit but not so's you'd notice that much on an MRI or cognitive testing, right? Except for empty sella and the headaches I've had all my life, everything problematic I've ever gone through growing up boiled down to either me being 'different' (not a compliment back then), or being a weirdo. On the other end of life now, I have some solid research backing up some of the things that have sexually haunted me my entire life. I can't definitively say what caused what, what exactly are symptoms of which thing, but I've got pretty good ideas how to sort it all out now.

So the big problem behind everything that I rarely talk about is spontaneous orgasms and persistent genital arousal disorder, which is hilarious given that I'm super asexual by nature. This is a very tangled up thing that I tried bringing up in therapy, but the push to have to define myself was so odious that I had to drop it. I'm not against defining and sharing, I'm just not that verbal all the time (thank you, autism spectrum), and when I am, I wind up talking too fast (thank you, euphoric episodes). Throw in another person processing the convo and it's really not long till we're off in crazy land arguing about what I'm really going through.

I started out born with deficits. I am socially deficit (whole cheer section in the back just shouted out at me, we all know I suck), prosopagnosia (face blindness) didn't help with building relationships at all anywhere any time in my life, autism lending to self stim (totally normal for auties as, I argue, a compulsive need for tension relief that isn't perceived as sexual by tiny children), and on top of all that, I have some weirdly brain wired synesthesia. I mix sex up with everything.

You cannot orgasm without a specific brain chemical, and once you orgasm, another brain chemical is released. The whole process usually follows a physically logical sequence of events. You fantasize, you touch someone, you enjoy them, you climax.

Not me.

As a child, all it took was someone angrily yelling and my anxiety would pop like a cork and there I'd be grinding on the floor trying to escape. I could vanish in my mind. I was gone. I didn't know for many years that I was dissociating, and that was the fastest way I was able to cope without melting down and winding up being punished for the extra chaotic noise I'd be adding to theirs. That was a coping mechanism to avoid pain that didn't make any sense to me. I didn't connect cause and consequence for years, so I didn't learn how to deal with the environment around me like I should have.

Let's throw in a monkey wrench. At some point, I must have had a back injury, who knows when or how. I skipped crawling. I dragged myself across the floor with my arms, they called it scooting. I have no idea why I didn't use my knees. When I decided I was ready to walk, I just stood up and walked. This back injury has showed up a number of times throughout my life, and each time I have been unable to walk. This is a consistent story in my life. It happened when I was a preteen, I think, all it took was a high jump off something to paralyze me in screaming pain. A chiropractor relieved the pressure on the nerve and I walked out after being carried in. That happened again three more times as an adult, with extensive physical therapy the last time it happened.

That pinched nerve area can be seen in this article. 👈 I've been through years of complications with that nerve, including such rough lower abdominal pain that I ran in to check for bladder infections sometimes monthly. I always turned out fine. I had severe groin pain off and on throughout my life, feeling like I fell hard in a bike accident or something. I never talked about it because anything involving genitals was so taboo back then, especially in our house, that I would have felt like a sinner just bringing it up.

Between tension in kindergarten and elementary school and that compressed nerve, I almost pathologically aimed for swingset poles on the playground. Just gripping my legs around them and pulling myself up to the top was nirvana in my poor brain, and I'd be so 'gone' that staff would have to come get me and pull me back into class crying in full meltdown. Any time I'm asked about excessive masturbation as a child, I feel so pissy that I can barely talk. That wasn't masturbating. That wasn't sex. That was a very small child with no coping skills desperately needing pain and stress relief. If we remember me talking about being born addicted to darvocet and having to live on donnatal (one of the ingredients is a barbituate) just to hold food down as a baby, it starts to make more sense that my brain was hard wired to overfeel everything as pain.

I'm not sure how I made it through puberty, but I severely lacked cognizance of any kind of sexual attraction all the way up through high school and beyond, which would have been very surprising if anyone knew how ridiculously my life was run by spontaneous orgasms the whole time. I saw it all around me, kids schmoozy and dopey all over each other, and I just sat there hiding continual orgasms out of the blue making it hard to think, although I amazed my gym teacher in high school when I shimmied up a rope right into the rafters one day, and jump pressed 800 pounds another day. I was exremely strong from all that private exercise. I would have died if anyone had ever found out. I wasn't shy, but I was brought up to be mortified over anything untoward, as the prudent might say. I had enough stim practice to outlast a nymphotic slut, and just no one ever knew.

I've brought this up before, but I was in my 20's before I realized I'd never visualized kissing anyone. This didn't stop me getting married, which was surreal. Never get married to escape your parents, that's dumb, and it backfired horribly. I was so inexperienced with sex that I didn't realize for years I'd married a pedophile. That's a scrapbook for the ol' burn pile, right?

I didn't consciously realize until my 30s that I was literally being sexually triggered by weather, colors, smells, architecture... It was highly embarrassing to be flipping through a home magazine in a doctor's waiting room and suddenly freeze into hiding orgasms because I saw a certain rock wall in a picture that was a certain splatter of grays and random patterns. That magazine was so spellbinding I almost brought it home. I kept sneaking peeks back at that page. Seriously? Yes, very seriously.

After I noticed that's all it took, I started keeping track of areas inside and outside of buildings that caught my attention. For some reason, certain colors and patterns in architecture (not all the same) set me off without warning, and it's so pleasurable just being in or near that building looking at the colors and patterns that an hour could slip by and I wouldn't notice. Guess what. There's an article.

What Is Sex Like for Someone with Synesthesia?

Given how long ago that was written, I'm surprised I didn't find it sooner. I guess I never thought to look it up, lol. I'm just disappointed that they confine the question to actual sex and not unrelated stimulus.

So you get a person with a pinched nerve, wonky brain wiring, social deficits, and a life fraught with tension and anxiety, and life is one long frustrating orgasm. 😂 I'm sure there are people out there who would pay good money to have this problem. And now I'm looking back on my life processing all the things I went through and realizing the impact this had on all my relationships...

Most of what I did socially for a long time was mimicry, because I don't seem to have a natural instinct for empathy. I'm clueless, so I sit there listening when people yap on about whatever, and I've been told I'm the best listener. Sadly, I started drinking heavily after I divorced the pedophile and wound up in some really stupid places with not very good people. I was still so unaware of myself socially that I didn't recognize red flags that should have been popping up, so I wound up raped a few times and nearly raped even more times. I got smart enough to see it coming and split the scene, but it took awhile to connect all that poor behavior around me to cause and consequence while I floated over it like bubbles on the tide. Because of this, I've walked through some dangerous places nearly unscathed, oblivious. I can't help but be very thankful looking back that I was so asexual that I never hooked up or bonded with anyone else who would have dragged my life down like my first husband. The only real exception was an affair I pursued more out of loneliness than anything, but the fallout blackened my heart so badly that I called quits on trying to have another boyfriend of any kind.

My second husband came from an arranged meeting and friends/coworkers pushing us to go out, and the deepest thought I had on that was surely they would at least have some sense of what would work out for us, because he was kind of like me, socially distant without much of a clue how to go forward after his own divorce. Not exactly a match made in heaven, but fast firm friends. It's been 30 years now since we first met.

We are not an average couple. At all. We rarely talk about sex, neither one of us can smoothly initiate, we're both kind of klutzy with anything in the aura of romance, and we're both too naturally honest to pretend feelings about anything. He can't lie to save his life, I always know. I think our biggest challenge, besides coming into another marriage each having a premade kid and all the ways we've been affected by extended family, is that we laugh too easily. Especially me. Everything is funny to me, because it's so cartoony. I'm sorry, but sex is hilarious. Everything about it is so dumb, like living memes or something. I cannot to this day get past the word 'frog' if it comes up in my mind for any reason whatsoever during sex without completely destroying the mood with laughing fits. After a few years of that, Scott told me it takes a brave man to continue in spite of a woman laughing in his face the entire time. Just writing that has me stifling giggles, I can't help it. He's right, he's a very brave man with superior focus.

Sooner or later, everyone on the planet experiences a glitch or problem in the 'plumbing', as it were. Some are born wonky, some develop wonky, some age wonky. Then if you have a sex partner of any kind, they may or may not have their own kind of wonky, and then you top it all off with whatever physical and mental/cognitive challenges we have that either twist things up or just flat get in the way of dealing with wonky.

Dysfunctions are part of life, same as heartburn and headaches. It's not a big deal unless you have attached a big deal to it to begin with. If you are using sex to express love and fail to express love any other way, you're going to have a really hard time when things go wonky. If you use sex as your entertainment and don't have any other diversions for pleasure, you're going to have a really hard time when things go wonky. You can do this all day and fill in the blanks

My life should have come with a warning label, since everything I got through is inside out and backward. I can't even imagine having to be married to me. But conversely, same with my husband. He came with his own baggage, as well. We'd both had previous messed up relationships, and we both had deep secrets about our childhoods involving trauma and abuse. It wasn't sexualized abuse for either of us, but it was every bit as traumatizing, so there were parts of us already closed off to sharing long before we met.

Everything we hear about marriage (and you can apply this to any sexual parnership) is about trust and honesty. You can have surface trust and honesty and still have none inside of you. Since a sexual partnership involves such interaction as allowing a person to learn how not to hurt you both physically and emotionally, it's easy to come into that already behind a fortress of safety. Some of us must operate that way because that is how we survived earlier grievances, but that doesn't mean we can't be kind and mindful of each other, even when we can't seem to share what we really need or prefer or like. Anyone who has been through emotional and physical abuses instantly understands what I am saying if they have consciously addressed processing their past. If you haven't dealt with that yet and shrug it off behind a firmly shut door, you cannot understand any of this because you are too closed off. When you are like that, you are using the other person, not sharing yourself. There's a fine line. You can love someone with your whole soul and still be using them because you have a demand that lines are not crossed, and you may not have even consciously addressed those lines. I think more of us are like this than we are willing to admit. Life on this earth kinda sucks and by the time we finally reach a place where we really long for soul-deep love, we are so closed off we cannot figure it out.

That was the kind of wall my husband and I ran into in our 30s, early on in our remarriage with previous kids, family all around inputting their negative opinions, challenges galore, and me dealing with my health issues while fronting that I could keep up. Which I couldn't, so there was a hurt pride thing going along with judgment from negative outsiders and my husband caught between all that. It was natural at that time that he'd fall back into old behavior patterns. Sex was about the only time we could seem to set some of that aside and just touch each other, so bringing up any more problems in that light was tantamount to taboo at that point, because it wouldn't have taken much more to completely break our marriage. That was our last option for managing to stick through the other challenges we were going through, and even though neither one of us could think wisely on it back then, I see now that our kindness of simply not beating each other up too much over sex fails was part of what saved us. The rest was sheer stubbornness, I think. 😄

But for real, first it was me, then it was him, then me again, and the times where sex was easy and good were rare. I had that back injury flaring up here and there on top of arthritic and other pain and some really monumental headache spells, and he developed a weird ongoing erectile dysfunction that could have gone back to injuries as a kid, and when we both overlapped these problems, sex was rough. His doctor told him the best way to treat his problem was to keep having sex, but there was no more information forthcoming from either the doctor or even my husband. We stopped even talking about it, just did it. It was up to me to establish what the lines were for my own pain, which became so excruciating at times that the only way I could orgasm at all (even on my own) was to grit my teeth and own it. Searing nerve pain ripping up your nervous system right at climax is a pretty big challenge, but there was no other way for 2-3 years. I was at a place where that pinched nerve was so bad that I had to drag in to years of chiropractor and then physical therapy just to keep walking, and that entire time I went through complications that felt like an arrow had been shot through the top of my left foot whenever I simply sat down, horrible sciatic flares, bearing down pains around my pelvic floor, groin pain like I'd been spiked, bladder and uterine pain that had no other cause or malady, just lots of pain. Sex was hard because any kind of new pressure in any direction anywhere increased the pain spikes, and then for some reason, orgasm itself was a fresh hell all on its own.

In reality, sex wasn't causing me any actual harm. The logic of sex, actually, was that I needed the extra strength conditioning to deal with that level of pain. That was before much could be found on internet, before we knew how to state our needs simply to doctors (my husband rarely saw doctors anyway, so we were on our own), and before we both made emotional breakthroughs about our pasts. The most logical thing I could think of to get through it was 1- kindness, and 2- patience, both of which I'm not naturally good at. I focused on problem solving, because that is what I was born for in this brain, and I became a sort of director- move this way, try that, slow down, wait a second while I, and sex became a clumsy couples physical therapy session with a very simple goal of either one of us just making it to climax. I wimped out sometimes, couldn't face my own pain, but I made sure he made it. No more laughing over frogs popping in my head. No more distractions. We literally went through undiscussed sexual workouts with each other for at least two years. Over time his erectile dysfunction worked itself out and he's fine, and over time my back grew stronger and healed from the pinched nerve and I'm fine.

That is what life partners DO.

As more time has passed and we've made individual emotional breakthroughs about our pasts, it's easier all the time to hang out and just be friends. As I've gone post menopausal and he's gone more diabetic, we've both become uninterested in sex together, which is actually pretty normal if you look around, but as far as I can tell, we're still fine. I take care of me, I assume he takes care of himself if he needs to, and we don't fret with each other over it. This house is our sanctuary and I like that we respect each other's space.

So now I'm learning about coconut oil and estradiol, because being post menopausal sucks for complications coming with dryness. It's interesting how treating dryness is affecting the arousal disorder, and that in turn is affecting depression and euphoric spells, pretty sure all these are linked through brain chemical processes. Got my little roller coaster going, but I seem to be doing ok with it.

Beyond that, everything in my head now feels like review. I feel like I'm coming up on the 'final', like when you're in college and the end of semester test consumes you. I feel like it's time to go back over everything I've learned and assess how I did with it, and then come to a conclusion about 'my stuff'.

After sticking through a major commitment to a relationship, I can honestly say I'm glad I stuck through it. Aside from feeling like we accomplished our goals getting the kids raised up right, I feel satisfied that I did my human duty learning how to apply what I learned about becoming a more kind person to the one person I committed my life to. That's not an easy thing. We went through years of wanting to call it quits, long spells of barely speaking to one another, things like that, but as water flows under the bridge, time cycled around and we can look back on that now with a few jokes. I can't imagine it having been better to split up, given all the problems we had that we'd have had to face all over again with new partners. I have to say I've been very lucky because I wasn't stuck through all this with someone abusing drugs or alcohol, he never got snotty hateful with me, never struck or pushed me around. We did have a bad day here or there where I'd be told what a drag I was on his life, and I'm not saying that was a good thing, but it was a real wakeup call for me because I really was a jerk sometimes. He didn't need me being a jerk on top of all the stuff we were trying to get through.

For whatever reason the world has become like it is, we have, as a society, been strongly brainwashed into believing that our sex lives are the measure of our happiness, and that we deserve to sex up ourselves any way we wish for fulfillment. I'm here to say that idea of sex is a drug. It's an addiction. I know what sex addiction is, I've lived it. Thanks to my crazy brain, I never turned that into anything selfish, like many people do. There are loads of people out there whose driving force in life is their next sexcapade, in or out of relationships, and some turn that into money making schemes. They model glitzy lifestyles like sex is all that and a bag of chips so they can make money off others, and boy do they get rich. Many of us fall for the glam of it, even if we don't fall into that abyss itself, and bring that home to apply to our own partner judgments and fails, and that isn't fair.

Sex is the most honest doorway in to your soul. If you are honest with yourself, you can see exactly what kind of person you are, could be, choose to be or not be when you use sex to rummage around in your mind and dig up your past. Why? Because sex is the fastest way our trust and honesty can be destroyed. Even if we are never sexually abused as children, the way we are taught to behave sexually can be very mind numbing to how we really feel in our souls later in life. Because I have this weird sense of self in a weird brain, I can see all this clearly. I can see the rubble strewn path others have to pick their way around just to meet me in the middle and talk about these things.

Kindness is logical no matter where you are in your own path. Kindness to yourself, kindness to others. Failure to be kind is our first mistake in any situation.

(Since 'peaceful protests' are messing up our minds, I'm going to insert that kindness also means protecting your loved ones when others will hurt them. It's that simple when we get down to the minute and second of that possible last breath of life, for those of you still freezing up over making decisions like that based on fear of reprisal.)

I bet you guys thought this post was going to be about all my really weird sex stuff, like object fetishes. 😂😂😂

If you were digging the soul stuff, this vid is pretty awesome.